I just felt like writing this post, though I have no clue where it is going to go. I’m unwell; after about two years of no major flares, my autoimmune condition has decided to rear its head again and I’m feeling all round a bit meh.
I’ve been in a weird mood all day: floating through motions but refreshing every social media site in the hope of someone saying something or something happening. I don’t know what. I don’t think I even care.
Days like this are tough. On the outside I look absolutely fine, but I’m, well, not. It could be nothing; I could be worrying about something that will be completely gone tomorrow morning and I’ll get up, go to the gym and feel great. Or I could need prescription strength painkillers to simply walk out of my room. At this point, I don’t know, and that’s the worst bit.
I guess one way of describing it is like the feeling you get when you’re coming down with a cold. You mentally note to add more tissues to your bag and stock up on flu medicine. Except it’s worse. Because a cold is normal – I can say to someone ‘oh I have a cold’ and they get it. When I say ‘I have a crap immune system’ they go ‘same’. But what I mean is every so often it literally attacks itself, but hey. It’s easier just to nod.
‘You don’t look ill’ is always a classic. I remember someone saying that to me when they came around to my house with my boyfriend at the time to drop off some work, as I was off school for two weeks after an entire summer of being stuck inside, ill. I feel embarrassed explaining, so I don’t. But then I feel embarrassed when I don’t.
With something like this, and I guess it’s similar for many chronic illnesses though I’m only talking about myself here as everyone is different, a mental note to add a packet of tissues or paracetamol to my bag isn’t enough. During one flare I made it around my uni applicant day, I even made it into school (though it was sixth form and I was doing half days and mum bless her came and picked me up / dropped me off). After that applicant day though, I couldn’t move for three days straight. That’s what I need to prepare for.
A week tomorrow, I’m supposed to be heading back to university. I’ll be driving myself, which leads me with my first issue: do I want to drive for three hours pumped full of various medicines? Medicines that make me so sleepy one consultant even asked how I managed to stay awake in the day (energy drinks and caffeine – lots of caffeine. And naps). Then there’s the question of how I will actually cope alone at uni – I’ve never been on my own for a flare before, all the little jobs that I am simply unable to do are done by my mum.
I guess I’m writing this post as it’s a way of getting thoughts out without burdening or ranting at anyone in particular. I don’t seek sympathy, just a place to exercise my thoughts. If this does end up as a full flare, I’ve been through worse ones.
If you’ve made it this far, I can only thank you, and maybe hope you’ve taken something from it.
So I’m going to plan a reading list or something, maybe reread a favourite book to lift my mood. If you have any recommendations of books that talk about chronic illness – maybe have the main character with something, for example – please let me know! I’d prefer YA, but anything is okay really. ☺️